Cathy E. Costanzo, Kristin Booth Glen, Anna M. Krieger
With the assistance of SANYS, SDMNY convened six panels of self-advocates around the state to help us create and advocate for the “Principles”; here several of them relate the results of those meetings and their views about legislation.
This article follows the earlier “Piloting Personhood” to describe the accomplishments of SDMNY over its first four years, and discusses what has been learned in order to make SDM an effective and viable practice with integrity.
An August 2019 independent evaluation of SDMNY’s New York City pilot program found that participating in its facilitation process was as associated with:
- increased self-advocacy, greater self-confidence, a wider array of experiences and trying new things, reduced anxiety, and greater happiness in people with IDD.
- reduced concerns that may have led to guardianship petitions for most potential guardian family members.
- removal of stereotypes about people with IDD in facilitators who engaged in the SDMNY training and experience.
- aligning with their values and expectations of how to treat their adult family members with IDD: respecting their voice, encouraging them to advocate for themselves, and supporting them to have more control over their own lives.
Locating personhood within the human right of legal capacity, the article describes some of the lessons SDMNY learned in the first year of its experiment in implementing legal capacity through SDM.
This and other articles published as part of the Cardozo Law Review’s issue on its 2017 legal personhood symposium are also available.
The author, mother of a 28 year old daughter with special needs describes her personal decision not to seek guardianship, and discusses how families should consider SDM as an important means to their children’s future independence.
The Human Services Research Institute’s independent evaluation of the first year of the Center for Public Representation (CPR) and Nonotuck Resource Associates, project in Northampton, Massachusetts focusing on process and best practices
This report, by Bizchut, a human rights/disability rights organization in Israel describes the supported decision-making model it developed over the course of its 2014-2015 pilot program that ultimately led to SDM legislation.
This report is HSRI’s evaluation of the second year of the CPR/Nonotuck pilot project, and focusses on the experience of the participants and best practices of the pilot.