An August 2019 independent evaluation of SDMNY’s New York City pilot program found that participating in its facilitation process was as associated with:
- increased self-advocacy, greater self-confidence, a wider array of experiences and trying new things, reduced anxiety, and greater happiness in people with IDD.
- reduced concerns that may have led to guardianship petitions for most potential guardian family members.
- removal of stereotypes about people with IDD in facilitators who engaged in the SDMNY training and experience.
- aligning with their values and expectations of how to treat their adult family members with IDD: respecting their voice, encouraging them to advocate for themselves, and supporting them to have more control over their own lives.
This report provides an independent evaluation of South Australia’s Office of the Public Advocate (OPA) SDM pilot from 2010 to 2012, among the world’s first, which targeted a total of 26 persons with and intellectual disabilities and traumatic brain injuries, detailing benefits to Decision-Makers as well as some of the challenges experienced by Supporters.
The Human Services Research Institute’s independent evaluation of the first year of the Center for Public Representation (CPR) and Nonotuck Resource Associates, project in Northampton, Massachusetts focusing on process and best practices
This report is HSRI’s evaluation of the second year of the CPR/Nonotuck pilot project, and focusses on the experience of the participants and best practices of the pilot.
The Report summarizes findings of a survey of people with I/DD with and without guardians, who engage in some informal form of SDM, as well as their guardians, and important persons in their lives.