Parent to Parent
Parent to Parent of New York State convened six (6) focus groups about prospective SDMA legislation, which this report covers.
Download PDF Parent to Parent of New York State-Convened Focus Groups on SDMA Legislation
National Council on Disability
This 2019 report by the National Council on Disability talks about how guardianship and alternatives impact the autonomy of people with intellectual and developmental disabilities.
The White Paper provides recommendations for the use of supported decision-making in four aspects of successful community living: Housing, Relationships and Natural Supports, Healthcare, and Long-Term Services and Supports.
ASAN partnered with the Family Network on Disabilities to produce Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood. This plain language handbook was created to help young autistic people understand and plan for their transition to adult life.
This report summarizes the findings of two 2019 forums convened by the ABA Commission on Law and Aging in which advocates, experts, and policymakers in disabilities and aging discussed decision supports for individuals across the age spectrum and to explored areas of consensus about supporting decision-making for all adults. Supplemental material available.
Samantha Backman
This 2019 report, discusses legal reforms undertaken by states from around the world in the area of legal capacity and supported decision-making, including legislative history, and emphasizing relevant local change-makers that played active roles in the reform process.
Elizabeth Pell
An August 2019 independent evaluation of SDMNY’s New York City pilot program found that participating in its facilitation process was as associated with:
This report from the National Council on Disability (NCD) describes the impact “the connections among autonomy, dignity, independence and protection” that guardianship and existing alternatives to guardianship have on people with disabilities, suggesting how SDM provides a viable, autonomy-enhancing alternative.
Download PDF Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination
The Human Services Research Institute’s independent evaluation of the first year of the Center for Public Representation (CPR) and Nonotuck Resource Associates, project in Northampton, Massachusetts focusing on process and best practices
Download PDF SDM Pilot A Collaborative Approach Pilot Evaluation Year 1 Report (2015)
Bizchut
This report, by Bizchut, a human rights/disability rights organization in Israel describes the supported decision-making model it developed over the course of its 2014-2015 pilot program that ultimately led to SDM legislation.
Download PDF SDM Service for Persons with Disabilities (2017)
This report describes the process utilized in Delaware to develop, promote and pass SDMA legislation.
Download PDF Final Report of the Supported Decision Making Committee of Delaware
HSRI
This report is HSRI’s evaluation of the second year of the CPR/Nonotuck pilot project, and focusses on the experience of the participants and best practices of the pilot.
Burton Blatt Institute Syracuse University
The Report summarizes findings of a survey of people with I/DD with and without guardians, who engage in some informal form of SDM, as well as their guardians, and important persons in their lives.