Parent to Parent of New York State convened six (6) focus groups about prospective SDMA legislation, which this report covers.
This 2019 report by the National Council on Disability talks about how guardianship and alternatives impact the autonomy of people with intellectual and developmental disabilities.
The White Paper provides recommendations for the use of supported decision-making in four aspects of successful community living: Housing, Relationships and Natural Supports, Healthcare, and Long-Term Services and Supports.
ASAN partnered with the Family Network on Disabilities to produce Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood. This plain language handbook was created to help young autistic people understand and plan for their transition to adult life.
This report summarizes the findings of two 2019 forums convened by the ABA Commission on Law and Aging in which advocates, experts, and policymakers in disabilities and aging discussed decision supports for individuals across the age spectrum and to explored areas of consensus about supporting decision-making for all adults. Supplemental material available.
This 2019 report, discusses legal reforms undertaken by states from around the world in the area of legal capacity and supported decision-making, including legislative history, and emphasizing relevant local change-makers that played active roles in the reform process.
An August 2019 independent evaluation of SDMNY’s New York City pilot program found that participating in its facilitation process was as associated with:
- increased self-advocacy, greater self-confidence, a wider array of experiences and trying new things, reduced anxiety, and greater happiness in people with IDD.
- reduced concerns that may have led to guardianship petitions for most potential guardian family members.
- removal of stereotypes about people with IDD in facilitators who engaged in the SDMNY training and experience.
- aligning with their values and expectations of how to treat their adult family members with IDD: respecting their voice, encouraging them to advocate for themselves, and supporting them to have more control over their own lives.
This report from the National Council on Disability (NCD) describes the impact “the connections among autonomy, dignity, independence and protection” that guardianship and existing alternatives to guardianship have on people with disabilities, suggesting how SDM provides a viable, autonomy-enhancing alternative.
The Human Services Research Institute’s independent evaluation of the first year of the Center for Public Representation (CPR) and Nonotuck Resource Associates, project in Northampton, Massachusetts focusing on process and best practices
This report, by Bizchut, a human rights/disability rights organization in Israel describes the supported decision-making model it developed over the course of its 2014-2015 pilot program that ultimately led to SDM legislation.
This report describes the process utilized in Delaware to develop, promote and pass SDMA legislation.
This report is HSRI’s evaluation of the second year of the CPR/Nonotuck pilot project, and focusses on the experience of the participants and best practices of the pilot.
The Report summarizes findings of a survey of people with I/DD with and without guardians, who engage in some informal form of SDM, as well as their guardians, and important persons in their lives.