Resources: Reports

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Supporting Decision Making Across the Age Spectrum A Report by The American Bar Association Commission on Law and Aging-March 2020

This report summarizes the findings of two 2019 forums convened by the ABA Commission on Law and Aging in which advocates, experts, and policymakers in disabilities and aging discussed decision supports for individuals across the age spectrum and to explored areas of consensus about supporting decision-making for all adults. Supplemental material available.

Download DOCX Supporting Decision Making Across the Age Spectrum A Report by The American Bar Association Commission on Law and Aging-March 2020

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SDMNY Evaluation Report

Elizabeth Pell

An August 2019 independent evaluation of SDMNY’s New York City pilot program found that participating in its facilitation process was as associated with:

  1. increased self-advocacy, greater self-confidence, a wider array of experiences and trying new things, reduced anxiety, and greater happiness in people with IDD.
  2. reduced concerns that may have led to guardianship petitions for most potential guardian family members.
  3. removal of stereotypes about people with IDD in facilitators who engaged in the SDMNY training and experience.
  4. aligning with their values and expectations of how to treat their adult family members with IDD: respecting their voice, encouraging them to advocate for themselves, and supporting them to have more control over their own lives.

Download PDF SDMNY Evaluation Report

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Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination

This report from the National Council on Disability (NCD) describes the impact  “the connections among autonomy, dignity, independence and protection” that guardianship and existing alternatives to guardianship have on people with disabilities, suggesting how SDM provides a viable, autonomy-enhancing alternative. 

Download PDF Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination

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Evaluation of the SDM Project (2012)

Margaret Wallace

This report provides an independent evaluation of  South Australia’s Office of the Public Advocate (OPA) SDM pilot from 2010 to 2012, among the world’s first, which targeted a total of 26  persons with and intellectual disabilities and traumatic brain injuries, detailing benefits to Decision-Makers as well as some of the challenges experienced by Supporters. 

Download PDF Evaluation of the SDM Project (2012)

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Quality Trust for Individuals with Disabilities – Final Report-Survey on Supported Decision-Making in Practice

Burton Blatt Institute Syracuse University

The Report summarizes findings of a survey of people with I/DD with and without guardians, who engage in some informal form of SDM, as well as their guardians, and important persons in their lives.

Download PDF Quality Trust for Individuals with Disabilities – Final Report-Survey on Supported Decision-Making in Practice