Resources: Reports
SDMNY SANYS 14 Principles Report
Hezzy Smith
Report – Self-Advocate Views On SDMNY’s 14 Principles For Supported Decision-Making Legislation
Parent to Parent of New York State-Convened Focus Groups on SDMA Legislation
Parent to Parent
Parent to Parent of New York State convened six (6) focus groups about prospective SDMA legislation, which this report covers.
Download PDF Parent to Parent of New York State-Convened Focus Groups on SDMA Legislation
Turning Rights Into Reality
National Council on Disability
This 2019 report by the National Council on Disability talks about how guardianship and alternatives impact the autonomy of people with intellectual and developmental disabilities.
ASAN’s Invitational Summit on Supported Decision-Making and Transition to the Community: Conclusions and Recommendations
The White Paper provides recommendations for the use of supported decision-making in four aspects of successful community living: Housing, Relationships and Natural Supports, Healthcare, and Long-Term Services and Supports.
Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood
ASAN partnered with the Family Network on Disabilities to produce Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood. This plain language handbook was created to help young autistic people understand and plan for their transition to adult life.
Supporting Decision Making Across the Age Spectrum A Report by The American Bar Association Commission on Law and Aging-March 2020
This report summarizes the findings of two 2019 forums convened by the ABA Commission on Law and Aging in which advocates, experts, and policymakers in disabilities and aging discussed decision supports for individuals across the age spectrum and to explored areas of consensus about supporting decision-making for all adults. Supplemental material available.
Initiatives from Around the World (2019)
Samantha Backman
This 2019 report, discusses legal reforms undertaken by states from around the world in the area of legal capacity and supported decision-making, including legislative history, and emphasizing relevant local change-makers that played active roles in the reform process.
SDMNY Evaluation Report
Elizabeth Pell
An August 2019 independent evaluation of SDMNY’s New York City pilot program found that participating in its facilitation process was as associated with:
- increased self-advocacy, greater self-confidence, a wider array of experiences and trying new things, reduced anxiety, and greater happiness in people with IDD.
- reduced concerns that may have led to guardianship petitions for most potential guardian family members.
- removal of stereotypes about people with IDD in facilitators who engaged in the SDMNY training and experience.
- aligning with their values and expectations of how to treat their adult family members with IDD: respecting their voice, encouraging them to advocate for themselves, and supporting them to have more control over their own lives.
Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination
This report from the National Council on Disability (NCD) describes the impact “the connections among autonomy, dignity, independence and protection” that guardianship and existing alternatives to guardianship have on people with disabilities, suggesting how SDM provides a viable, autonomy-enhancing alternative.
Download PDF Beyond Guardianship: Toward Alternatives That Promote Greater Self-Determination
Evaluation of the SDM Project (2012)
Margaret Wallace
This report provides an independent evaluation of South Australia’s Office of the Public Advocate (OPA) SDM pilot from 2010 to 2012, among the world’s first, which targeted a total of 26 persons with and intellectual disabilities and traumatic brain injuries, detailing benefits to Decision-Makers as well as some of the challenges experienced by Supporters.
SDM Pilot A Collaborative Approach Pilot Evaluation Year 1 Report (2015)
The Human Services Research Institute’s independent evaluation of the first year of the Center for Public Representation (CPR) and Nonotuck Resource Associates, project in Northampton, Massachusetts focusing on process and best practices
Download PDF SDM Pilot A Collaborative Approach Pilot Evaluation Year 1 Report (2015)
SDM Service for Persons with Disabilities (2017)
Bizchut
This report, by Bizchut, a human rights/disability rights organization in Israel describes the supported decision-making model it developed over the course of its 2014-2015 pilot program that ultimately led to SDM legislation.
Download PDF SDM Service for Persons with Disabilities (2017)
Final Report of the Supported Decision Making Committee of Delaware
This report describes the process utilized in Delaware to develop, promote and pass SDMA legislation.
Download PDF Final Report of the Supported Decision Making Committee of Delaware
SDM Evaluation Report Year 2 (2016)
HSRI
This report is HSRI’s evaluation of the second year of the CPR/Nonotuck pilot project, and focusses on the experience of the participants and best practices of the pilot.
Quality Trust for Individuals with Disabilities – Final Report-Survey on Supported Decision-Making in Practice
Burton Blatt Institute Syracuse University
The Report summarizes findings of a survey of people with I/DD with and without guardians, who engage in some informal form of SDM, as well as their guardians, and important persons in their lives.